Online Communities
Finally! This list is growing! I found some of these too late for me so maybe they will be good for you. Your “community” might be virtual but it is a valued and necessary community.
@alogcabininbrooklyn- “We are the bad ass women who juggle it all, but still want to feel good.”Written by Nikki Nurse who is a millennial caregiver to her Mom. Her writing is so encouraging. She reminds me daily to take care of myself, which is WAY more than getting my nails done once a year. She has practical advice about delegating, grief and how to prioritize yourself while caring for someone else.
@iamgertrudejordan - Oh this beautiful woman makes me cry! This site is written by Ty Lewis and is so beautifully done. Ty trains caregivers and professionals on Alzheimer’s and really speaks to the importance of finding your voice as a caregiver. I love the way that she talks about taking respite and being honest about the reality of being a parent and caring for a parent. She is caring for her mother who is truly an excellent dancer. Ty’s website is www.incaseiforgetconsulting.com.
@momofmymom - This was the first first person I found on Instagram talking about care-taking that I really related to. I loved her honesty and her ability to express her sadness. Her videos include tips on caregiving, how to include music, how to get someone out of a car and how to be patient when being with a parent that has dementia. Her mom died very suddenly so know this when you start to follow her. I loved her use of music with her mom.
@belightcare- Super practical tips on how to care for someone with dementia. Written by Adria Thompson it is so helpful. If you are caregiving for someone with dementia, you really need her tips. She is a speech language pathologist and a dementia consultant. She is a teacher of all things dementia and has some excellent ideas and practical tips for helping those we care about. Her website is www.belightcare.com.
@alzassociation @RootedHope @wearehfc
“As someone deeply affected by Alzheimer’s disease, the worst parts of my journey were the years that I didn’t talk about it. Those were years when I felt alone because I didn’t think that anyone could possibly know what I was going through, let alone help — which I now know is not even close to being the reality. So let’s talk about it. Let’s share our stories — the good, the bad and the ugly. ”